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This was a question asked in a support group that I used to be an administrator for. Sometimes my blog posts come from my answers to member’s questions there, like this one. If you have them throughout your spine, at multiple levels, it’s an indication that your tissue is weak and you likely have a CTD. There are hundreds of different types, and most can’t be tested for. They are diagnosed by symptoms, and this is a symptom. For example, I have 11 in my cervical spine alone.

This post is for patients who have high cerebrospinal fluid, which can complicate Tarlov Cysts treatment, and cause worse symptoms, with nerve compression on cysts. As always, talk with your healthcare provider about any medical decisions that you want to try. In 2018 I had a very successful surgery on my sacral cysts, which gave me about 85% healing. Prior to surgery I was partially paralyzed, had bladder disfunction, always felt like I had a UTI, I felt like I had a dagger

The AFGI ( Aspiration & Fibrin Glue Injection) procedure was a technique used in the early days of Tarlov Cyst treatment, and is still...

Surgical Success, or Failure? By Beth Cooper This was written as a response to a commonly asked question in the support groups online. I...

This post is not for Newbies. It’s not for patients that are early to the diagnosis, or for the majority of patients who deal with this...

Last year was the first year that I had the ability, and hope, that I could withstand an 11 hour flight, to visit Europe. That trip was...

So, you’ve already been diagnosed with one rare and “scary” neurological condition, that doctors don’t know much about, and now you’ve...

Having been an admin of support groups for decades now, both in real life and online, I have a great understanding of the dedication,...

Taurine , a new treatment recommendation for the symptom of muscle contractions. This supplement has also shown great benefits for...

I want to tell of a dear friend of mine, whom I call my Brother. His name is Ali. I am adding this post to my medical section too,...

I’m the type of person who always tries to find the good, even in the most devastating situations. I’ve proven my mental strength time...

I’m going to just update this post as I can throughout my journey, instead of making a lot of separate posts. Days 1-5 We made it to Rome...

I never dreamed, even a year ago, that I would attempt a trip to Europe that would require an 11 hour flight, and weeks filled with...

I came across my 2 year post op update and thought that it was important for me to share just how slow this recovery can be but that...

I’m not sharing this to give a comprehensive list of every possible symptom, but rather, to show examples of symptoms that can cause a...

First of all I want to begin by praising those who have been called into the medical profession. Without their care and dedication, we...

I’ve made plenty of posts on this blog about my medical journey, so I’m not going to go through that again. Please read them, if you’re...

I have often compared the surgery for this disease to climbing Mt Everest. Getting to the peak can be brutal but there you are, looking...

How is a Tarlov Cyst treated surgically? Because the TC is the actual nerve root that comes directly off of the spinal cord, it can not...

People ask me questions about PEA constantly. I’ve answered time and again in the support groups and members can search for those answers, but I wanted to write it all out here, so that it will be easily found when needed. Feel free to share. When I was at my worst, I was on massive doses of Gabapentin and opioids, but they were barely touching my pain. I was trying everything that I heard of in the groups and made sure to start them one at a time, so I could judge what work