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The AFGI ( Aspiration & Fibrin Glue Injection)   procedure was a technique used in the early days of Tarlov Cyst treatment, and is still...

Surgical Success, or Failure? By Beth Cooper This was written as a response to a commonly asked question in the support groups online. I...

This post is not for Newbies. It’s not for patients that are early to the diagnosis, or for the majority of patients who deal with this...

Last year was the first year that I had the ability, and hope, that I could withstand an 11 hour flight, to visit Europe. That trip was...

So, you’ve already been diagnosed with one rare and “scary” neurological condition, that doctors don’t know much about, and now you’ve...

Having been an admin of support groups for decades now, both in real life and online, I have a great understanding of the dedication,...

Taurine , a new treatment recommendation for the symptom of muscle contractions. This supplement has also shown great benefits for...

I want to tell of a dear friend of mine, whom I call my Brother. His name is Ali. I am adding this post to my medical section too,...

I’m the type of person who always tries to find the good, even in the most devastating situations. I’ve proven my mental strength time...

I’m going to just update this post as I can throughout my journey, instead of making a lot of separate posts. Days 1-5 We made it to Rome...

I never dreamed, even a year ago, that I would attempt a trip to Europe that would require an 11 hour flight, and weeks filled with...

I came across my 2 year post op update and thought that it was important for me to share just how slow this recovery can be but that...

I’m not sharing this to give a comprehensive list of every possible symptom, but rather, to show examples of symptoms that can cause a...

First of all I want to begin by praising those who have been called into the medical profession. Without their care and dedication, we...

I’ve made plenty of posts on this blog about my medical journey, so I’m not going to go through that again. Please read them, if you’re...

I have often compared the surgery for this disease to climbing Mt Everest. Getting to the peak can be brutal but there you are, looking...

How is a Tarlov Cyst treated surgically? Because the TC is the actual nerve root that comes directly off of the spinal cord, it can not...

People ask me questions about PEA constantly. I’ve answered time and again in the support groups and members can search for those...

Non surgical options Please remember that you need to work with your medical providers to create the Protocols that work for you. Always...

Patients can have vastly different reactions to this diagnosis. For many, who have been searching for answers for decades, they can feel...